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Health Directory > Diseases And Conditions > Genetic Disorders
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Robinow Syndrome Foundation
Details about the organization as well as the disease. Includes general information, a survey, newsletter and photos.
http://www.robinow.org/
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Laurence Moon Bardet Biedl Society
Fully accessible site for people with LMBB, their families, friends, carers and interested professionals. Opinions, news, views, research, updates, and contact details.
http://www.lmbbs.org.uk
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Rett Syndrome Association (UK)
The Rett Syndrome Association UK, a registered charity, is dedicated to the support of girls and women, together with their families and carers, suffering from this complex neurological disorder, which affects them throughout their lives. Sufferers are pr
http://www.rettsyndrome.org.uk/
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PXE International
The comprehensive source for pseudoxanthoma elasticum research and world wide activities.
http://www.pxe.org
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The Noonan Syndrome Support Group
Information about this organization as well the disease itself. Offers news, events, a survey, a newsletter and further resources.
http://www.noonansyndrome.org/
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Nail Patella Syndrome Worldwide
The home page of Nail-Patella Syndrome Worldwide, the only non-profit serving the needs of people with Nail-Patella Syndrome. Includes information on the syndrome and the work of the organization.
http://www.nailpatella.org
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